Happy Friday ALL!!
Now down to business...I have my father law arriving tomorrow at dinner time. A baby shower from 2-5, lasagne to make, a bed to set up, a trip to the mall for some errands, food to prepare, a visit from a friend today, a house to clean, 4 kids to mother, 6 loads of laundry and a partridge in a pear treeeeee!
Phew, aside from ALL that I got a call from Lillian today (she is one of the church ladies that handles the financial areas) she told me I kept her up last night!! she was thinking about me and how I will be fundraising for San Fransisco and she gave me some numbers and told me she has a few ideas for us to present to the church! at the end of the conversation she asked me to kindly stop keeping her up at night :)
I have a few things happening soon with Ashton, after a long visit from his speech therapist the other day we went over preparations for kindergarten!! WHAT? KINDERGARTEN??? yes it's all but a year away...holy cow! We discussed a behavioural assessment at sunny hill, a 16 button tech talk, and the possibility of a wheel chair stroller. I asked about the wheel chair because how else is he going to get around the school and out to recess? We also have a neurological assessment (happens every 2 years) coming up again. What they do is check him out go over ALL his reports from his therapists from the last 2 years (we send them a copy each week) ask us specific questions about his development (takes about an hour) then they place him according to percentages. He was at 50 % last visit, as in half of where he should be developmentally and cognitively. This is tricky though, because if he goes over 70% in his lifetime all outside government and health board help will vanish! no respite, no free diapers, no equipment, no disability help later in life, no wheel chair! but if he is at 69% he is fine...silly isn't it? His bath seat alone cost $2200 can you imagine? it also means if he hits 72% he gets nothing! it's a weird system but I suppose they had to draw the line somewhere. From there he will have an MRI and a CT scan, every 5 years from here on out. This will be his second for both. He is also going to be ECG scanned as often as we choose since his syndrome has heart problems associated with it.
Okay that's enough blabber from me!! coffee's done, shower time
I gotta MOVE, I am antsy sitting here...have a great day everyone!!
Friday, August 22, 2008
Frantic Friday?
Posted by Denise Nagy at 9:30 AM
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1 comments:
It feels funny to pray that Ashton stays below 70 but that's what's happening.
See you tomorrow!
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